Friday, December 06, 2013

Sitting at UCSF

After every MRI, I meet with two sets of Neuro-oncologists, one at Stanford where I receive my standard ontological care and one at UCSF where I participated in a few trials during my treatment. Today I am at UCSF, finishing up my week of cancer check-ins. Hopefully, this will serve as some sort of mental closure to this particularly gruesome (emotionally speaking) MRI cycle. You win some, you loose some, and while I've physiologically won the grand bonus prize with another clean MRI, my emotional score this quarter was far below par and not what many of expect of me.

I appreciate the kind and thoughtful comments, the hugs from those I see and the stress relieving help that I get from my family. I have a caring and compassionate husband who tries his hardest, and an abundance of positive energy running toward me in the form of a six year old boy. I have all of this, and then some. And sometimes, it's just not enough. Sometimes, in spite if all the goodness that surrounds me, I feel encased in sadness, loss and gloom.

Please don't be afraid for me. Don't worry or feel that you need to be on eggshells around me. The way I feel right now is a natural part of a life-long grieving process that I have come to accept as a part of my life. The MRIs, the anxiety and emotional response serve as a reminder of how my life has changed. Forever. And there's absolutely nothing that I can do about it. I am thankful for my health and continued stability, but I am simultaneously enraged that something like brain cancer came along and changed my life irrevocably, without any sort or warning or negotiation or compensation. I'm not blind, I'm not stupid--I know I am doing incredibly well, much, much better than most people with Glioblastoma Multiforme IV. And I am grateful for that truth. But I am perfectly within my rights to feel robbed of the full, plump, shining life of NORMALCY that I had until September 2009.

So don't freak out when I write posts like this. It's part of my process and it will help me in the long run.

1 comment:

Laura K said...

You rock! Even when depressed & gloomy! Sending you hugs, love & a few high fives for good measure!